9.23.14 Dedication – Ashley

I am so happy I was able to meet Ashley, probably day 3 or 4 of the trip in Virginia. Her smile is contagious! Mom saw her at the Fredericksburg walk in May and agreed Ashley is as friendly as she appears! Hope you have a great year in school! Keep smilin!

Ashley

“Ashley is our second child, with her pregnancy everything was wrong, she is a miracle child really, she came to this world on March 30th 2005 weighting 5 pounds 6 ounces, and been 17 inches long. As soon as I saw her I was in love, she came home and nothing seemed wrong, she cried all the time for hours and hours, just as if she was in pain, all the doctors could tell me was, all babies cry and there is nothing wrong with her… With a heart murmur as the only explanation why… Time passed and I noticed that her eye lashes were inside her eyes, she had to deal with that for a year, she was late in every milestone, she stated crawling after been a year old, walking after 18 months and no talking… Again no explanation of why, when she was 3 I stated to look for help and finally got the school system to do an evaluation to her, she was diagnosed with speech delay and developmental delay, at age 4 she started pre school, and speech therapies, she started talking, the Williams syndrome diagnosing didn’t came for another 2 years, I took her to an ophthalmologist for a check up and he told me that with his experience he could tell she had WS, I went home and started the research about it, asked my doctor for a genetic test and waited… After some weeks the results came back, she had Williams syndrome, she was 6 years old at the time, after that she started special education and we now see 14 different specialists including a speech therapist, occupational therapist and physical therapist, she is now 9 years old, the light in our house and the blessing we needed, she was meant to be with us, and she is our joy. She is a very smart little girl, filled with love to give and always making people smile and laugh. Nothing stops her from getting what she wants and fighting like a trooper, I learned so much with her, people tells me that she is so blessed to have me, but I think it’s the other way around, I am the blessed one for having her.”

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