WS Info & Press

3 sections on this page – Videos on WS, Press Releases, Beautiful faces 

Videos describing Williams Syndrome:

Probably the best  video about Williams Syndrome: Extradordinary Gifts, Unique Challenges, Introduction to Williams Syndrome

http://www.williams-syndrome.org/ws

 

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Williams Syndrome 1 by ImaginaryFilm 2009,

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Williams Syndrome on Discovery Chanel

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A Beautiful Mystery, 60 Minutes Australia, 2004…

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Where Everybody Wants to be Your Friend, ABC News

http://www.youtube.com/watch?v=gF4DiqEdN3w

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WSA Awareness – Canyon Region 2010

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Press releases from the journey

http://www.kesq.com/…/teen-completes-cross-country…/30482060 – New Years Eve interview in Palm Desert starring Megan

http://www.baltimoresun.com/news/maryland/baltimore-county/north-county/ph-nc-kevin-payne-bike-run-cross-country-1218-20141218-story.html#page=1 – Baltimore Sun and North County news article in December 2014.

http://issuu.com/shawmedia/docs/gaz_10142014/1 …… Sauk Valley Gazette Oct 14

http://www.kcwy13.com/home/headlines/Teenager-Running-for-Williams-Syndrome-Stops-by-Casper-274183831.html ….KCWY news in Casper, WY aired 9/5

http://www.ktvz.com/news/kid-cycles-now-running-across-country-for-obscure-syndrome/27199082 ….KTVZ news in Bend, OR aired 7/28

https://www.facebook.com/photo.php?v=882093131819254&set=vb.100000557268018&type=2&theater ….. Udaya’s interview, not on the news but he was cool!

http://kiem-tv.com/video/man-riding-bicycle-across-country-spread-awareness-williams-syndrome ……. KIEM news in Eureka, CA aired 7/22

http://www.kesq.com/news/williams-syndrome/26561610 ……. KEQS news in Palm Springs, CA aired 6/18 at 5 & 6pm “(Kevin) is a very impressive and inspiring young man. His story was the best story in our newscast yesterday. Bob Smith, News Director.”

http://www.jrn.com/ktnv/positively-lv/better-lv/19-year-old-bikesruns-across-America-263511881.html …… KTNV news in Vegas aired 6/16 at 5am and 6am

http://www.jrn.com/ktnv/positively-lv/better-lv/19-year-old-bikesruns-across-America-263511881.html …… KTNV news in Vegas aired 6/16 at 5pm

http://www.mynews3.com/content/video/default.aspx?videoID=5170628 …… Las Vegas interview aired 6/13 at 11 am

http://www.mynews3.com/content/video/default.aspx?videoID=5170628 …… Mr Camera Production Coverage
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Charlton County Herald (GA)

http://www.charltoncountyherald.com/articles/2014/04/02/news/doc533ac5d0a92cd998269018.txt

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ABC TV – Inside Pressbox Interview (Baltimore WMAR)

http://www.pressboxonline.com/videos/inside-pressbox-03-16-14-kevin-payne

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By Derek Wattay, The Baltimore Sun3:49 p.m. EST, February 15, 2014
 http://www.baltimoresun.com/sports/outdoors/bs-sp-outdoors-kevin-payne-cycling-williams-syndro-20140215,0,2657756.story#ixzz2v6kfhhN9

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By Hannah Pursley, Hereford Harbinger, November-December 2013

Talk about brotherly love! Hereford alumnus Kevin Payne is biking across the country this summer in honor of his brother, Hereford alumnus Jacob Payne, who has Williams Syndrome. Kevin is biking to raise awareness of Williams Syndrome, which is a genetic condition present at birth and characterized by medical problems including cardiovascular disease, developmental delays, and learning disabilities.

“I’ve always wanted to bike across the country and recently decided that now would be the best time because I’m in the best shape.”

Individuals with Williams Syndrome also possess striking verbal abilities, highly social personalities, and an affinity for music. The condition affects one in 10,000 people worldwide (about 20,000 to 30,000 people in the United States) and is known to occur equally in both males and females.

It will take an estimated six months for Kevin to bike the 9000 miles and crossover 29 states. The excursion will interfere with his first semester of college next year, but he isn’t “in a rush to get [his] degree” and will “most likely go back [to school] in the spring.” He will begin his journey in Baltimore, bike up to Seattle, through California, past the Grand Canyon, across to Florida, and finish back in Baltimore.

“I am excited for him. It is the kind of expedition only a strong, young body could endure. I am proud of him. He is doing it for a good cause. Of course I am nervous a bit just as any parent would be and am urging him to avoid Death Valley, which is just inhumane in the summer,” stated Debbie Payne, Kevin and Jacob’s mother.

As for food and shelter, Kevin plans on mostly eating “PB&J’s, granola bars, different sweets, or stopping at local diners.” He has begun saving money for his trip and will sleep wherever is available.

“The national Williams Syndrome Association office will help find families along the way he can stay with overnight, where he can also do laundry and get a good meal. I am hoping that 20 to 30 families will volunteer,” stated Debbie.

“I will probably just pull off the road, walk back into the woods and set up camp for the night. I will be stopping at several national parks to take a day or two to rest and sight-see,” Kevin stated.

Kevin has also begun to e-mail several National parks to find out if he can speak about Williams Syndrome. He needs to fundraise 5,000 dollars by the beginning of June and is looking for sponsors and people to pledge one dollar for each state he crosses.

Over the fourth of July, Kevin will meet his mom at the Williams Syndrome Association national convention in Anaheim, California which will “be at about the 30-40% mark of the trip as planned now,” said Debbie.

“I always hear about these races for the cure and fundraisers for children with disabilities. Since my brother has Williams Syndrome and no one really knows what that is, why not raise awareness and tell people about it?” Kevin stated.

“I’m happy that he is doing this. It makes me happy,” stated Jacob.

(Hannah has a twin sister with Williams Syndrome, Hannah will graduate from Hereford High in 2014. )

 

Beautiful faces!!

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maeve

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Ari

Ari

Ari

Belle...

Belle…

Elain

Just beautiful!

Just beautiful!

Ari and a familiar face from a couple weeks ago!  Hi Erik...

Ari and a familiar face from a couple weeks ago! Hi Erik…

Left to right, Dan, our new friend Addie, and Kev

Left to right, Dan, our new friend Addie, and Kev

brandon

jordan 2

jordan

Jake feeding me!!!!  Jake was diagnosed 3 months later. One of my favorite pictures!!!

Jake feeding me!!!! Jake was diagnosed 3 months later. One of my favorite pictures!!!

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jacey

Henry!

Henry!

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Jake and Ali

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